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Susannah Fox

I help people navigate health and technology.

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Champions

Wow! How? Community as therapy

March 28, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

Social isolation prevents people from getting help. The effect is amplified among people living with serious mental illness. They are the most in need of community support, yet are the least likely to get it in a health care system that is primarily focused on clinical interventions like medication. A recent report by M. Usman, […]

Filed Under: Champions, Networkers, peer-to-peer health care Tagged With: Fountain House, Joshua Seidman, M. Usman, mental health, Wow! How? Health

Wow! How? Eating disorder recovery

March 7, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

Thirty million people in the U.S. will have a clinically significant eating disorder at some point in their lives. Treatment gaps mean that only a fraction of sufferers will receive the care they need due to the high cost of traditional, in-patient treatment and a scarcity of mental health professionals available for some populations and […]

Filed Under: Champions, peer-to-peer health care, Solvers Tagged With: eating disorders, Equip, Erin Parks, Kristina Saffran, Rebel Health, Wow! How? Health

Wow! How? Hospital Alarms

February 23, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

Yoko Sen is a musician who, when spending time in a hospital as a patient in 2012, noticed that her cardiac monitor and another patient’s fall-risk alarm created a spooky chord known as the devil’s interval. Composers use it sparingly because it sounds so foreboding. Even in a weakened state, Sen began asking questions about […]

Filed Under: Champions, Solvers Tagged With: Fda, Larry Chu, Nick Dawson, Philips, Rebel Health, Wow! How? Health, Yoko Sen

Wow! How? Moebius Syndrome

January 24, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

There are seven universal facial expressions, understood across all cultures: happiness, surprise, contempt, sadness, anger, disgust, fear. Someone’s ability to recognize – and use – those expressions helps them navigate in the world. Historically, people with expressive faces – a big grin, for example – were perceived as happier than those who did not smile […]

Filed Under: Champions, Networkers Tagged With: Kathleen Bogart, Moebius Syndrome, Rebel Health, Wow! How? Health

Public Q&A: Rare Disease and Rebel Health

January 19, 2024 By Susannah Fox Leave a Comment

Rebel Health: A field guide to the patient-led revolution in medical care

The Global Genes RARE Advocacy Summit in September 2023 provided a forum for me to talk, for the first time, about my upcoming book and how rare disease communities have been a key part of my professional life. Here’s a set of questions that Sravanthi Meka of Global Genes asked me in advance of the meeting: […]

Filed Under: Champions, health data, Networkers, peer-to-peer health care, public Q&A, Seekers, Solvers Tagged With: Global Genes, Hhs, Long Covid, MIT Press, Rare Disease, Rebel Health

Wow! How? Patient-Led Research

January 18, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

A scientific journal article written primarily by patients about their health condition has been downloaded over a million times. We reached this milestone after years of activism, advocacy, and demands for justice. The internet supercharged everyone’s ability to connect with information and with each other. The crucible of the pandemic then forced us into new […]

Filed Under: Champions, Networkers, patient networks, positive patterns, Seekers, Solvers Tagged With: Council of Medical Specialty Societies, Eric Topol, Fiona Lowenstein, Hannah Davis, Julia Moore Vogel, Lisa McCorkell, Long Covid, Patient-Led Research Collaborative, Rebel Health, Wow! How? Health

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  • Seekers
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Recent Comments

  • James on Wow! How? Obesity Treatment: “Inspiring read! Ilant Health’s holistic, shame-free approach to obesity care is exactly what’s needed to address a complex condition with…” Sep 30, 01:23
  • Susannah Fox on Caregiving in America: “I hear you, Mickey! You likely already know about Caring Across Generations and other organizations that have tried to move…” Sep 25, 14:51
  • Mickey Alderman on Caregiving in America: “Interesting information. Being unpaid is a huge issue that has been ongoing for decades. The question we keep asking is…” Sep 25, 10:42

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