Today is the one-year anniversary of the publication of my book, Rebel Health. To celebrate, I am inviting you to listen to my favorite conversation about why I wrote it and what lessons we can all draw from the patient-led revolution. Emily Silverman, MD, is the host of The Nocturnists. She suggested that I start […]
Champions
Wow! How? Patient-led Design
Michael Graves, the renowned architect and designer, was hospitalized in 2003 when a sinus infection spread to his spinal cord, a very rare occurrence. He survived but was paralyzed from the chest down. As he moved among hospitals and rehabilitation centers, Graves was struck by how the patient rooms and furniture were not only ugly, but […]
Wow! How? Social Support Matters
Most people, at the time of their diagnosis with a sleep disorder, do not know a single other person with the same condition. Yet peer support is an effective aid to this group, just as it has been shown to help people navigating pregnancy, living with diabetes, recovering from organ transplant, and managing many other […]
Wow! How? Food Equality
This post is part of my series: Wow! How? Health. My concept is to tell a story that makes a reader say, “Wow! How did they accomplish this great health innovation?” The answer is often related to concepts I explore in my book, Rebel Health. Please let me know what you think or if you have […]
Wow! How? Patient Memoirs
In his book, The Long Haul, Ryan Prior writes about his advocacy on behalf of people with ME/CFS: Though I had negotiated a fragile truce with the disease, my deeper fear was that it would eventually fully disable me, just as it had done for so many of my friends…At the edge of my every thought […]
Wow! How? Peer Support for Queer Youth
Today’s “wow” is unfortunately a troubling statistic: 49% of LGBTQ+ young people in the U.S. experience depressive symptoms, according to a survey conducted by Hopelab and Common Sense Media, compared with 24% of their straight and cisgender peers. But many Queer youth are meeting the challenge by accessing online therapy to a greater degree (44%, […]
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