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Susannah Fox

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Champions

The Black Panther Party’s Health Innovations

February 20, 2025 By Susannah Fox Leave a Comment

Cover of the book Body and Soul by Alondra Nelson. Black and white photo of seated people wearing white coats and taking a blood sample from the finger of a child.

Here is the 40th in my series of “Wow! How? Health” stories, also shared on LinkedIn if you want to follow the conversation on that platform. In 1971, the Black Panther Party diagnosed the federal government’s failure to study sickle cell anemia, a genetic disease believed at the time to be found predominately in people […]

Filed Under: Champions, Networkers, Seekers, Solvers Tagged With: Alfredo Morabia, Alondra Nelson, Bill Wallace, Black Panther Party, Long Covid, Mary T. Bassett, personal science, Quantified Self, Rare Disease, Rebel Health, sickle cell anemia, Wow! How? Health

Rebel Health on The Nocturnists

February 13, 2025 By Susannah Fox Leave a Comment

Illustration of a human figure holding a stethoscope. The words The Nocturnists appears at center.

Today is the one-year anniversary of the publication of my book, Rebel Health. To celebrate, I am inviting you to listen to my favorite conversation about why I wrote it and what lessons we can all draw from the patient-led revolution. Emily Silverman, MD, is the host of The Nocturnists. She suggested that I start […]

Filed Under: Champions, Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: AA, ACT-UP, Barbara Spindel, Black Panther Party, caregivers, diabetes, Emily Silverman, Hhs, La Leche League, MIT Press, Parkinson's, Pew Research Center, podcast, Rare Disease, rare diseases, Rebel Health, The Nocturnists, Tom Ferguson

Wow! How? Patient-led Design

January 16, 2025 By Susannah Fox Leave a Comment

A man sits on stage in a wheelchair. Behind him is a screen showing a chair and stool.

Michael Graves, the renowned architect and designer, was hospitalized in 2003 when a sinus infection spread to his spinal cord, a very rare occurrence. He survived but was paralyzed from the chest down.  As he moved among hospitals and rehabilitation centers, Graves was struck by how the patient rooms and furniture were not only ugly, but […]

Filed Under: Champions, Solvers Tagged With: assistive devices, Michael Graves, Rebel Health, Stanford Medicine X, Wow! How? Health

Wow! How? Social Support Matters

November 21, 2024 By Susannah Fox Leave a Comment

5 hands gripping 5 wrists

Most people, at the time of their diagnosis with a sleep disorder, do not know a single other person with the same condition. Yet peer support is an effective aid to this group, just as it has been shown to help people navigating pregnancy, living with diabetes, recovering from organ transplant, and managing many other […]

Filed Under: Champions, Networkers, peer-to-peer health care, Seekers Tagged With: hypersomnia, Julie Flygare, narcolepsy, Project Sleep, Rebel Health, sleep disorders, Wow! How? Health

Wow! How? Food Equality

October 11, 2024 By Susannah Fox Leave a Comment

Peas and pods on cutting board

This post is part of my series: Wow! How? Health. My concept is to tell a story that makes a reader say, “Wow! How did they accomplish this great health innovation?” The answer is often related to concepts I explore in my book, Rebel Health. Please let me know what you think or if you have […]

Filed Under: Champions, Solvers Tagged With: Attane Health, Emily Brown, food allergy, food insecurity, Rebel Health, Wow! How? Health

Wow! How? Patient Memoirs

August 29, 2024 By Susannah Fox 2 Comments

Four books: The Long Haul; Chasing My Cure; AfterShock; Wide Awake and Dreaming

In his book, The Long Haul, Ryan Prior writes about his advocacy on behalf of people with ME/CFS: Though I had negotiated a fragile truce with the disease, my deeper fear was that it would eventually fully disable me, just as it had done for so many of my friends…At the edge of my every thought […]

Filed Under: Champions, key people, Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: cancer, David Fajgenbaum, Jessie Gruman, Julie Flygare, Long Covid, Lucy Grealy, ME/CFS, narcolepsy, rare diseases, Ryan Prior, Wow! How? Health

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