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Susannah Fox

I help people navigate health and technology.

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medical records

An ode to health data rights

April 8, 2011 By Susannah Fox 10 Comments

Fun for Friday: David Hale singing an ode inspired by Regina Holliday and e-Patient Dave:

Filed Under: health data, medical records Tagged With: David Hale, E-Patient Dave, Regina Holliday

What people living with disability can teach us

January 26, 2011 By Susannah Fox 10 Comments

The Pew Internet Project recently issued a short report noting that people living with disability are less likely than other adults in the U.S. to use the internet: 54%, compared with 81%. The first question many people ask when they hear that is, Why? The second is, What can be done? The third is, or […]

Filed Under: medical records, policy issues Tagged With: connected health, digital divide, disability, HCI, HIT, human-computer interaction, mobile, Pew Internet, PHR, usability

“Give Us Our Dammed Data” – Regina Holliday–Susannah Fox

August 2, 2010 By Susannah Fox 1 Comment

17 authors with weapons in hand stare down upon the viewer. The three panel painting measures 60 inches by 144 inches. It is a very large painting, and yet it is crowded with those who have been hurt and those who have suffered. Every one of them is an author. Nearly everyone in the painting […]

Filed Under: key people, medical records

Health Geek Radio: Adam Bosworth’s Straight Talk Express

May 4, 2010 By Susannah Fox Leave a Comment

Adam Bosworth of Keas delivered quite a lecture yesterday at the Alliance for Healthcare Foundation. He talks about how Americans don’t really like data (but they need it), why “frugal innovation” is the best path for start-ups, how e-Patient Dave shook up the EHR world, why health privacy legislation would kill patient-driven research, and why […]

Filed Under: health data, medical records, policy issues Tagged With: Adam Bosworth, E-Patient Dave, EHR, Google Health, Health Data, Health Privacy, Keas

“HIPAA is SO 1996″

September 25, 2009 By Susannah Fox 3 Comments

That’s a direct quote from Paul Tang, of the Palo Alto Medical Foundation, at last week’s meeting of the Health IT Policy committee, of which he is vice chair. Dr. Tang was riffing on an e-Patient Dave quote, which I read during my testimony: I want innovation at a rate that resembles the rate of […]

Filed Under: hc's problem list, medical records, policy issues Tagged With: Architectural Designs, Assumptions, Cell Phones, Debates, Decisions, Diana Forsythe, Hipaa, Infrastructure Design, innovation, Latanya Sweeney, Liquidity, National Infrastructure, Palo Alto Medical Foundation, Panelists, Patient Privacy, Paul Tang, Point Of View, Policy Committee, Policy Discussions, Testimony, Vice Chair

Health IT Policy: E-patients want access

September 17, 2009 By Susannah Fox 10 Comments

What would you say to policymakers who are discussing the implementation of a national health information infrastructure? Here’s what I’d say: E-patients want access to tools and information.  Many will find what they need, many will not. You can help.

Filed Under: health data, medical records, policy issues, reforming hc Tagged With: American Adults, American Association Of Retired Persons, Choice Control, Data Stewardship, Doct, Early Days Of The Internet, Health Care Decisions, Health Data, Health Information Infrastructure, Health Information Technology, Internet Adoption, Internet Health Care, National Coordinator, National Health Information, New Tools, Patient Choice, Patient Privacy, Patient Privacy Rights, pew internet project, Regenstrief Institute, Social Impact Of The Internet

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