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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

“I’ll tell you what gloomy is…”

November 23, 2012 By Susannah Fox 4 Comments

I want to continue the Engage with Grace blog rally by highlighting my favorite comment thread about it, from a 2010 post on e-patients.net. For me, this is what blogging is about — providing a public space for debate about ideas that matter to you. Treb wrote: I really think that a topic like end […]

Filed Under: end of life Tagged With: Engage with Grace

Engage with Grace

November 22, 2012 By Susannah Fox Leave a Comment

5 questions about end-of-life choices

A guest post from the Engage with Grace team… One of our favorite things we ever heard Steve Jobs say is… ‘If you live each day as if it was your last, someday you’ll most certainly be right.’ We love it for three reasons: It reminds all of us that living with intention is one […]

Filed Under: end of life Tagged With: Engage with Grace

“So many quiet heroes and heroines who live among us…”

November 21, 2012 By Susannah Fox Leave a Comment

– Zoe Brain, in a comment on the New York Times magazine story, The Hazards of Growing Up Painlessly, which garnered an extraordinary display of public ignorance and fellowship around rare conditions. My hope is that the reporter and editors read every comment and learned from the community peer review of the article.

Filed Under: e-patient stories Tagged With: New York Times, Rare Disease

Don’t immediately believe the mhealth hype – Dave Clifford

November 15, 2012 By Susannah Fox 12 Comments

Don't believe the hype machine

Carrying on the tradition of taking an epic comment and publishing it as a stand-alone post, I’m very happy to feature Dave Clifford’s take on the new mobile health data: I care very deeply about numbers and measuring what people are doing in reality versus expectations. I believe that polling is a useful quantitative tool […]

Filed Under: featured commenters, trends & principles Tagged With: Dave Clifford, mobile, Mobile Health

Go mobile

November 8, 2012 By Susannah Fox 12 Comments

In 2008, I summarized Pew Internet’s health findings in 7 words of wisdom: Recruit doctors. Let e-patients lead. Go mobile.* Four years later, I’m banging the same drum, but with even more data to back it up. The market for mobile-ready health information continues to grow, even as health apps are just simmering along (in […]

Filed Under: trends & principles Tagged With: mobile, Pew Internet

Sincerity in the storm (welcome to our world)

November 4, 2012 By Susannah Fox 5 Comments

Hurricane Sandy “slapped the snark out of Twitter” for media reporter David Carr. In his column today, Carr discusses a newfound sense of community, which will sound familiar to anyone who uses social media to navigate an acute or chronic health condition: – Twitter turns serious during a crisis – Certain users and hashtags can […]

Filed Under: patient networks, peer-to-peer health care, social media Tagged With: #bcsm, #whatifhc, New York Times, Twitter

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Recent Comments

  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07
  • Jill H. on Case study: Trevor’s disease: “Hello Carrie, I am curious how your son is doing after the surgery? Were you able to fix the locked…” May 28, 19:07
  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10

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