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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

The boy with a thorn in his joints (and the mom who turned over every rock)

February 6, 2013 By Susannah Fox 8 Comments

Questions marks painted on pavement

When I was writing the Pew Research report, “Peer-to-peer Healthcare,” I switched back and forth between numbers and stories, national survey data and notes from my fieldwork among people living with rare conditions. I learned to scan my spreadsheet of rare-disease respondents for women’s names since they seemed to stop at nothing to protect their […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: moms, New York Times, peer-to-peer healthcare, Rare Disease, rare diseases

A moment of peace

January 31, 2013 By Susannah Fox 2 Comments

Marcin Ryczek image of a man feeding swans in the snow

Filed Under: beauty and wonder

Join a discussion about “Tracking for Health”

January 28, 2013 By Susannah Fox Leave a Comment

“When our observations about ourselves are formally collected, rather than just remembered, it’s easier to get advice and comment, and to improve our reasoning with the help of others. ‘Remember kids, the only difference between screwing around and science is writing it down,’ said Adam Savage of Mythbusters. Technology helps us write it down.” – Ernesto Ramirez, […]

Filed Under: trends & principles Tagged With: Pew Internet, Quantified Self, tracking

Sneak preview: Tracking for Health

January 25, 2013 By Susannah Fox Leave a Comment

This interview was recorded at Stanford Medicine X where I gave a sneak preview talk about the report Pew Internet is releasing on Monday, “Tracking for Health.” Joyce Ho is a fabulous interviewer — as a med student, she definitely adds her own insights to the conversation about our findings.

Filed Under: trends & principles Tagged With: Stanford Medicine X, tracking

2 down, 3 to go

January 15, 2013 By Susannah Fox 7 Comments

I’m doing a ton of “day job” writing these days, analyzing survey data about how Americans gather, share, and create health information. Here is a rundown of the reports released so far and what’s coming up: 1) Mobile Health 2012 (Nov. 8, 2012) 85% of U.S. adults own a cell phone and, of those, 31% […]

Filed Under: demographics, trends & principles Tagged With: california healthcare foundation, Pew Internet

Look for the helpers

January 7, 2013 By Susannah Fox 9 Comments

A little boy grinning and grasping Mr. Rogers's face

You may have seen the image before, associated with this quote: “When I was a boy and I would see scary things in the news, my mother would say to me, ‘Look for the helpers. You will always find people who are helping.’ To this day, especially in times of ‘disaster,’ I remember my mother’s […]

Filed Under: beauty and wonder Tagged With: caregivers, Mister Rogers, Rare Disease, Washington Post

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Recent Comments

  • Lisa Suennen on Wow! How? Community: “That is a beautiful story. Kids always have the best answers” Aug 29, 11:31
  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45

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