I was lucky enough to be invited to a “Data Users Conference” sponsored by the Health Information National Trends Survey/National Cancer Institute, which really should have been called Health Data Geeks Unite! If you have a moment, I highly recommend browsing through some of the presentations, particularly the following: David Stinchcomb showed how isopleth maps […]
Personal Health Records–Susannah Fox
Since keeping track of your own health records is part of the e-patient responsibilities described by Charlie Smith in today’s post, I thought I’d point out a study sent to me by Lorenzo Moreno, an analyst at Mathematica Policy Research. His team conducted 3 focus groups with people living in medically underserved sections of New […]
Patient-Driven Content at MedShelf.org–Susannah Fox
Online support groups have long been recognized as an important and unique source of medical information and social support for patients. Derek Hansen, Paul Resnick, and Sean Munson at the University of Michigan’s School of Information, are trying to help online support groups create community repositories using wiki software at http://medshelf.org.
Chemotherapy Fog Is No Longer Ignored as Illusion–Susannah Fox
April 29’s New York Times featured a story about breast cancer survivors who meet online to talk about “chemo brain” and how to cope with it: “Chemotherapy Fog Is No Longer Ignored as Illusion” (http://www.nytimes.com/2007/04/29/health/29chemo.html?em&ex=1178164800&en=8ddebc22187bd826&ei=5087%0A). Here are some excerpts which reminded me of our ongoing discussions about e-patients: – “Until recently, oncologists would discount it, […]
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