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Susannah Fox

I help people navigate health and technology.

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“Instead of being a futurist, you want to be a nowist.”

May 14, 2012 By Susannah Fox Leave a Comment

“By being agile and having your antennas out, you can react when you see the trend starting, rather than relying on these multiyear, multimillion-dollar analyses on the future of X. Instead of being a futurist, you want to be a nowist.” – Joi Ito in Wired

Filed Under: trends & principles

Five years on

May 13, 2012 By Susannah Fox Leave a Comment

Five years ago this month I wrote my first blog post for e-patients.net: Chemotherapy Fog Is No Longer Ignored as Illusion. Back then the blog was a sandbox, a way for those who knew and loved Tom Ferguson to continue the conversations we’d had with him, on the blog he’d launched just before he died. […]

Filed Under: Uncategorized

Visualize This: An e-Patient’s Medical Life History

March 18, 2012 By Susannah Fox 10 Comments

The following was originally Katie McCurdy’s response to the excellent, ongoing discussion about the future for self-tracking. It’s too good not to elevate to a post of its own — Susannah. ____________________________________________________________________________  Katie’s self-crafted medical timeline (Click to enlarge; see story below) There is some recent thought that self-tracking or data gathering is “a manifestation of […]

Filed Under: e-patient stories, e-pts resources, featured commenters Tagged With: Katie McCurdy

Mama birds: Catherine Fairchild and Laurie Strongin

March 16, 2012 By Susannah Fox 2 Comments

On February 29, 2012, Rare Disease Day, I hosted a conversation with Catherine Fairchild and Laurie Strongin, two people who have inspired me in my research about the social impact of the internet on health. They have also inspired me personally, finding joy and reasons to laugh when I think I’d just sit down and […]

Filed Under: e-patient stories, maternity Tagged With: Genetic Disorder, Hope for Henry, Marble Road, Mccune Albright Syndrome, Rare Disease

The impact of the internet on one man’s life

March 13, 2012 By Susannah Fox 9 Comments

Nell Minow is a movie critic and corporate governance watchdog (yep, both). She and I were seated together at a luncheon a few weeks ago, part of a weekend-long meeting on leadership. We had just watched the movie, Act of Valor, and began talking about different kinds of leaders and heroes — those who seek […]

Filed Under: e-patient stories, internet geology Tagged With: Americans With Disabilities Act, bulletin boards, Facial Paralysis, Hearing Loss, Indomitable Spirit, Moebius Syndrome, Navy Seals, Nell Minow, Rare Disease

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Recent Comments

  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07
  • Jill H. on Case study: Trevor’s disease: “Hello Carrie, I am curious how your son is doing after the surgery? Were you able to fix the locked…” May 28, 19:07
  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10

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