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Susannah Fox

I help people navigate health and technology.

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Why fieldwork in patient communities is essential

May 29, 2012 By Susannah Fox 2 Comments

Thanks to a tweet from Brian Ahier, I’m re-reading Internet Health Resources from 2002. It was the first time we’d done extensive online fieldwork in addition to national phone surveys, yielding stories like this one: One mother told how, when she suspected that her daughter had a serious respiratory infection called RSV, she looked it […]

Filed Under: research issues

“Gradually, then suddenly.”

May 27, 2012 By Susannah Fox Leave a Comment

– Tim O’Reilly, quoting from Ernest Hemingway’s The Sun Also Rises: “How did you go bankrupt?” “Two ways. Gradually, then suddenly.” Tim writes: “I love lines from literature that crystallize a notion, and then become tools in your mental toolbox. This is one of those. Keep it handy, because you’re going to see ‘gradually, then […]

Filed Under: trends & principles

“Instead of being a futurist, you want to be a nowist.”

May 14, 2012 By Susannah Fox Leave a Comment

“By being agile and having your antennas out, you can react when you see the trend starting, rather than relying on these multiyear, multimillion-dollar analyses on the future of X. Instead of being a futurist, you want to be a nowist.” – Joi Ito in Wired

Filed Under: trends & principles

Five years on

May 13, 2012 By Susannah Fox Leave a Comment

Five years ago this month I wrote my first blog post for e-patients.net: Chemotherapy Fog Is No Longer Ignored as Illusion. Back then the blog was a sandbox, a way for those who knew and loved Tom Ferguson to continue the conversations we’d had with him, on the blog he’d launched just before he died. […]

Filed Under: Uncategorized

Visualize This: An e-Patient’s Medical Life History

March 18, 2012 By Susannah Fox 10 Comments

The following was originally Katie McCurdy’s response to the excellent, ongoing discussion about the future for self-tracking. It’s too good not to elevate to a post of its own — Susannah. ____________________________________________________________________________  Katie’s self-crafted medical timeline (Click to enlarge; see story below) There is some recent thought that self-tracking or data gathering is “a manifestation of […]

Filed Under: e-patient stories, e-pts resources, featured commenters Tagged With: Katie McCurdy

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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