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Susannah Fox

I help people navigate health and technology.

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Diabetes by Design

July 11, 2025 By Susannah Fox Leave a Comment

Two posters on a wall above folding chairs. One mimics a famous Beatles album design and reads "Type 1 Diabetes" above four figures. The other poster features a fist holding an insulin pen with the words RAGE BOLUS above it.

Alex Durussel-Baker was on a plane taxiing down a runway when she found out she had Type 1 diabetes. She had been increasingly tired and had lost a lot of weight without meaning to, so had gone to a clinic where she lives in Edinburgh to get checked out.  The nurse was reassuring – even […]

Filed Under: Networkers, Solvers Tagged With: diabetes, Rebel Health, Wow! How? Health

Wow! How? Psychedelic Outlaws

June 27, 2025 By Susannah Fox Leave a Comment

Part of the Psychedelic Outlaws book cover. Glass dishes containing tablets, mushrooms, and capsules.

Imagine the nerves behind one of your eyes suddenly bursting into flames of pain, relentlessly burning for hours. The pain recedes, then roars back, day after day. You try to describe what is happening inside your head to your family, your clinicians, even yourself, but words fall short. It is the worst pain a human […]

Filed Under: Champions, Networkers, patient networks, peer-to-peer health care, Seekers, Solvers Tagged With: books I love, Clusterbusters, David Fajgenbaum, Global Genes, Joanna Kempner, Patient-Led Research Collaborative, psychedelics, Rebel Health, Wow! How? Health

Wow! How? Cancer Treatment Innovation

May 30, 2025 By Susannah Fox Leave a Comment

A pipette hovers above a dozen test tubes

This post is the latest in my series of “Wow! How? Health” stories, also shared on LinkedIn if you want to follow the conversation on that platform.  When Michael Katz was diagnosed with multiple myeloma, he was fortunate to connect with someone who had recently completed treatment, the “just-in-time someone-like-me” that could guide him. He vowed to do the […]

Filed Under: Champions, Networkers, Seekers Tagged With: ACOR, cancer, Clinical Trials, International Myeloma Foundation, Mayo Clinic, Michael Katz, multiple myeloma, Rebel Health, Vincent Rajkumar, Wow! How? Health

Jean Nidetch, Rebel Health leader

May 9, 2025 By Susannah Fox 2 Comments

A blonde woman in a black shirt looks to her left.

Jean Nidetch and six friends decided to try to lose weight together, meeting at her home to encourage and support each other in their quest. Their success drew more friends and in May, 1963, Nidetch launched a company based on the idea that peer support is key to weight control. Over 400 people showed up […]

Filed Under: Champions, Networkers, Seekers, Solvers Tagged With: Jean Nidetch, Rebel Health, Weight Watchers, Wow! How? Health

Rare Disease in the NYT

April 23, 2025 By Susannah Fox 7 Comments

Ultrasound of a baby

My phone started blowing up with texts from friends and family members yesterday morning, alerting me to a New York Times magazine cover story by Amanda Hess, “My Son Has a Rare Syndrome. So I Turned to the Internet” (gift link). Hess writes beautifully about her experience being dropped into the medical maze and her […]

Filed Under: Networkers, peer-to-peer health care, Seekers Tagged With: Amanda Hess, New York Times, Rare Disease

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Recent Comments

  • Susannah Fox on Patient Input on Clinical Trials: “Great question, thank you! My impression is that our best bet is to make it appeal to study sponsors as…” Oct 17, 10:26
  • Dave deBronkart on Patient Input on Clinical Trials: “I don’t have anything to add but I have a suggestion for the problem that trialists don’t *know* about the…” Oct 16, 14:01
  • Rufus on Hack needed: Tiny pills, trembling hands: “How about using a small piece of store bought bread? Slices of bread can be “smooshed,” and a small piece…” Oct 5, 23:48

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