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Susannah Fox

I help people navigate health and technology.

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Upcoming Conferences–Susannah Fox

May 5, 2008 By Susannah Fox Leave a Comment

I’ll be in Boston tomorrow for a World Congress Leadership Summit. The organizers certainly use all the right key words to describe the event; I’m kind of hoping the presenters get to wear purple robes or something to match the superlatives. The next conference I’ll attend will be in DC. I asked Josh Seidman, president […]

Filed Under: reforming hc

E-patient Interview: Sheryl Stein

May 1, 2008 By Susannah Fox 5 Comments

Sheryl Stein, known to many as “wrekehavoc,” dispenses her wisdom and humor on a 6,000-member online community of parents (using good old listserve technology) and on her blog. In this third edition of our e-patient interviews, Sheryl talks about the power of community and how “reaching out via the internet is now an ingrained habit […]

Filed Under: e-patient stories, others' e-patient stories Tagged With: blog, chronic disease, Common Variable Immunodeficiency, community, CVID, Delivery Methods, Diagnosis, Diagnostician, e-patient, Gammaglobulin Therapy, Health Care Decisions, Humor On, Immune Deficiency Foundation, Ingrained Habit, Listserve, NIH, No Doubt, Pamphlets, Patient Interview, Patient Interviews, patient networks, Pharmaceutical Company, Pros And Cons, Self Advocate, self-care, Whopper

E-patient Interview: Amy Tenderich–Susannah Fox

April 18, 2008 By Susannah Fox 5 Comments

Amy Tenderich is the engine behind DiabetesMine, “a gold mine of straight talk and encouragement for people living with diabetes.” Hearing her speak at Health 2.0 was a highlight of the conference for me and she just co-authored a book, so I wanted to bring her over to our page and ask a few questions […]

Filed Under: e-patient stories, others' e-patient stories Tagged With: 99s, American Healthcare System, Asking The Right Questions, C Section, Collective Voice, Continuous Glucose, Diabetes Diagnosis, Glucose Monitors, Godsend, Gold Mine, Health Care Decisions, Health Insurance, Information Patients, Insulin Pumps, Kick Ass, Living With Diabetes, Patient Interview, Share Experiences, Straight Talk, Time In History, Type 1 Diabetes

No Secrets–Susannah Fox

April 16, 2008 By Susannah Fox Leave a Comment

Ted Eytan‘s April 16, 2008, iHealthBeat column lays out the benefits of providing real-time, secure access to health records: “As our profession understands the benefits of patient partnership better, more medical groups are discovering that there aren’t compelling arguments for keeping patients’ information secret.”

Filed Under: found on the net

E-patient Interview: Stirrup Queen

April 16, 2008 By Susannah Fox 7 Comments

Cheryl Miller has written an excellent article, “Blogging Infertility,” in The New Atlantis. She brings up a lot of themes that have been echoing throughout my other reading: a once-silent group newly empowered by the internet; teaming patients with similar profiles; home-care tips (there could be a whole blogroll on injections, btw, starting with AmyT […]

Filed Under: e-patient stories, maternity, others' e-patient stories Tagged With: Cheryl Miller, Community Member, Ectopic, Endo, Health Care Decisions, New Atlantis, Nicu, Patient Community, Patient Interview, Peggy Orenstein, pregnancy, Reconnection, Self Advocate, Stirrup, Treatment Choices, Waiting For Daisy, Waiting Rooms

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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