• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Rebel Health
  • Blog
    • greatest hits
    • health data
    • peer-to-peer health care
    • public Q&A
  • About me
    • Bio
    • Now
    • Curriculum vitae
  • Events

EURORDIS

Case study: One in a million diagnosis

June 29, 2018 By Susannah Fox 19 Comments

Screen shot of peer health advice video

When we get sick or face a new challenge in our lives, we often feel alone, but we shouldn’t. There are people who have been in the same situation and are eager to help if they only knew how to find us. That’s one of my core beliefs, based on the fieldwork and research I’ve […]

Filed Under: peer-to-peer health care Tagged With: case study, EURORDIS, Matt Might, National Organization For Rare Disorders, NIH, Rare Disease, rare diseases

Footer

Explore

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Topics

  • Seekers
  • Networkers
  • Solvers
  • Champions
  • Health Data
  • Peer-to-Peer Health Care
  • Public Q&A

Recent Comments

  • Susannah Fox on Lessons learned about hospice care: “Thank you for sharing!” Jul 30, 12:46
  • Samitivej Hospital on How I choose which conferences to attend: “Such a thoughtful framework! I especially relate to how much the organizer and audience shape the whole experience. For me,…” Jul 28, 07:42
  • DEANFoundation on Lessons learned about hospice care: “This deeply honest blog sheds light on the hidden challenges caregivers face during hospice care The DEAN Foundation in India…” Jul 21, 09:07

Copyright Susannah Fox © 2025 · WordPress · Log in