Rare disease communities welcomed me as a researcher, inspired me to highlight their ingenuity in my book, Rebel Health, and now I am honored to share results from the first probability-based national survey to measure the rare disease population. I partnered with my former Pew Research colleague Kristen Purcell, now at SSRS, to write the […]
ChatGPT
Wow! How? Dr. ChatGPT
Every post in my Wow! How? Health. series starts with a story that hopefully makes a reader say, “Wow! How did they accomplish this great health innovation?” The answer is often related to concepts I explore in my book, Rebel Health. Please let me know what you think or if you have questions. Comments are open. When […]
Case study: Recurrent fever
Anyone who has endured a multiple-day fever — or cared for someone with one — knows how exhausting it can be. Imagine experiencing nine weeks of a mysterious elevated temperature. Then nine MONTHS of what feels like a personal broken thermostat. And clinicians have little to no explanation besides plans for future tests. That’s the […]
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