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Susannah Fox

I help people navigate health and technology.

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research issues

What’s the future for self-tracking?

March 9, 2012 By Susannah Fox 38 Comments

Stephen Wolfram’s essay, The Personal Analytics of My Life, begins: “One day I’m sure everyone will routinely collect all sorts of data about themselves.” A Pew Internet survey suggests we have a long way to go: a September 2010 survey found that 27% of internet users age 18+ track their own health data online. There […]

Filed Under: health data, research issues, trends & principles Tagged With: Analytics, Brigid Schulte, Health Data, Internet Survey, Matthew Cornell, Pew Internet, Quantified Self, Stephen Wolfram, tracking

Making Strides Toward Improving Health Literacy Online–Susannah Fox

March 10, 2011 By Susannah Fox 8 Comments

This is a guest post by Jessica Mark, healthfinder.gov and Outreach Program Manager, Health Communication and eHealth Team in the Office of Disease Prevention and Health Promotion at the U.S. Department of Health and Human Services We all struggle with complex health information. In fact, as many as 9 out of 10 adults experience limited […]

Filed Under: hc's problem list, policy issues, research issues

President’s Cancer Panel: Input, Please–Susannah Fox

November 30, 2010 By Susannah Fox 36 Comments

What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer Research: Accelerating Scientific Innovation” (PDF of the agenda).

Filed Under: policy issues, pts as teachers, research issues Tagged With: ACOR, Andrew Schorr, Bill Claxton, cancer, Center For Studying Health System Change, Chordoma, Erin McCartney, hints, Institute Of Medicine, national cancer institute, Palo Alto Medical Foundation, patientslikeme, Pew Internet

Crowdsourcing a Survey: Health Topics–Susannah Fox

July 16, 2010 By Susannah Fox 63 Comments

The Pew Internet & American Life Project will soon go into the field with our next health survey and we need your help. One of our core findings (8 in 10 internet users, or about two-thirds of U.S. adults, look online for health information) is based on a series of questions that is tweaked in […]

Filed Under: research issues Tagged With: pew internet project, survey

Health Geek Tip: Abstracts are ads. Read full studies when you can.–Susannah Fox

June 16, 2010 By Susannah Fox 16 Comments

Ivan Oransky, executive editor of Reuters Health, provided excellent evidence yesterday regarding the need to look past abstracts of journal articles if accuracy matters to you:

Filed Under: research issues Tagged With: cancer, Gary Schwitzer, Gilles Frydman, HealthNewsReview, Ivan Oransky, national cancer institute, Wikipedia

Frequently Asked (But Unanswered) Questions About E-patients

May 11, 2010 By Susannah Fox 41 Comments

As I’ve written before, I love questions. It’s an honor to be handed someone’s nascent idea and to help them shape it (which is what I think a question really is). But this time I’m asking for YOUR input. These excellent questions were sent to me by Liav Hertsman and his colleagues at Tel Aviv […]

Filed Under: demographics, public Q&A, research issues Tagged With: authority, demographics, doctor ratings, drug reviews, Pew Internet, Reliability, Trustworthiness, UGC

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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