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Susannah Fox

I help people navigate health and technology.

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research issues

Why fieldwork in patient communities is essential

May 29, 2012 By Susannah Fox 2 Comments

Thanks to a tweet from Brian Ahier, I’m re-reading Internet Health Resources from 2002. It was the first time we’d done extensive online fieldwork in addition to national phone surveys, yielding stories like this one: One mother told how, when she suspected that her daughter had a serious respiratory infection called RSV, she looked it […]

Filed Under: research issues

What’s the future for self-tracking?

March 9, 2012 By Susannah Fox 38 Comments

Stephen Wolfram’s essay, The Personal Analytics of My Life, begins: “One day I’m sure everyone will routinely collect all sorts of data about themselves.” A Pew Internet survey suggests we have a long way to go: a September 2010 survey found that 27% of internet users age 18+ track their own health data online. There […]

Filed Under: health data, research issues, trends & principles Tagged With: Analytics, Brigid Schulte, Health Data, Internet Survey, Matthew Cornell, Pew Internet, Quantified Self, Stephen Wolfram, tracking

Making Strides Toward Improving Health Literacy Online–Susannah Fox

March 10, 2011 By Susannah Fox 8 Comments

This is a guest post by Jessica Mark, healthfinder.gov and Outreach Program Manager, Health Communication and eHealth Team in the Office of Disease Prevention and Health Promotion at the U.S. Department of Health and Human Services We all struggle with complex health information. In fact, as many as 9 out of 10 adults experience limited […]

Filed Under: hc's problem list, policy issues, research issues

President’s Cancer Panel: Input, Please–Susannah Fox

November 30, 2010 By Susannah Fox 36 Comments

What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer Research: Accelerating Scientific Innovation” (PDF of the agenda).

Filed Under: policy issues, pts as teachers, research issues Tagged With: ACOR, Andrew Schorr, Bill Claxton, cancer, Center For Studying Health System Change, Chordoma, Erin McCartney, hints, Institute Of Medicine, national cancer institute, Palo Alto Medical Foundation, patientslikeme, Pew Internet

Crowdsourcing a Survey: Health Topics–Susannah Fox

July 16, 2010 By Susannah Fox 63 Comments

The Pew Internet & American Life Project will soon go into the field with our next health survey and we need your help. One of our core findings (8 in 10 internet users, or about two-thirds of U.S. adults, look online for health information) is based on a series of questions that is tweaked in […]

Filed Under: research issues Tagged With: pew internet project, survey

Health Geek Tip: Abstracts are ads. Read full studies when you can.–Susannah Fox

June 16, 2010 By Susannah Fox 16 Comments

Ivan Oransky, executive editor of Reuters Health, provided excellent evidence yesterday regarding the need to look past abstracts of journal articles if accuracy matters to you:

Filed Under: research issues Tagged With: cancer, Gary Schwitzer, Gilles Frydman, HealthNewsReview, Ivan Oransky, national cancer institute, Wikipedia

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