Thanks to a tweet from Brian Ahier, I’m re-reading Internet Health Resources from 2002. It was the first time we’d done extensive online fieldwork in addition to national phone surveys, yielding stories like this one: One mother told how, when she suspected that her daughter had a serious respiratory infection called RSV, she looked it […]
“Gradually, then suddenly.”
– Tim O’Reilly, quoting from Ernest Hemingway’s The Sun Also Rises: “How did you go bankrupt?” “Two ways. Gradually, then suddenly.” Tim writes: “I love lines from literature that crystallize a notion, and then become tools in your mental toolbox. This is one of those. Keep it handy, because you’re going to see ‘gradually, then […]
“Instead of being a futurist, you want to be a nowist.”
“By being agile and having your antennas out, you can react when you see the trend starting, rather than relying on these multiyear, multimillion-dollar analyses on the future of X. Instead of being a futurist, you want to be a nowist.” – Joi Ito in Wired
Five years on
Five years ago this month I wrote my first blog post for e-patients.net: Chemotherapy Fog Is No Longer Ignored as Illusion. Back then the blog was a sandbox, a way for those who knew and loved Tom Ferguson to continue the conversations we’d had with him, on the blog he’d launched just before he died. […]
Visualize This: An e-Patient’s Medical Life History
The following was originally Katie McCurdy’s response to the excellent, ongoing discussion about the future for self-tracking. It’s too good not to elevate to a post of its own — Susannah. ____________________________________________________________________________ Katie’s self-crafted medical timeline (Click to enlarge; see story below) There is some recent thought that self-tracking or data gathering is “a manifestation of […]
Mama birds: Catherine Fairchild and Laurie Strongin
On February 29, 2012, Rare Disease Day, I hosted a conversation with Catherine Fairchild and Laurie Strongin, two people who have inspired me in my research about the social impact of the internet on health. They have also inspired me personally, finding joy and reasons to laugh when I think I’d just sit down and […]
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