I will speak on Monday in Bilbao at an event with 3 names but one goal: to understand how to use social media to innovate and improve health, with a special focus on evidence and the future. I’m looking forward to learning from my hosts and listening to two beautiful languages.
Here’s the title of my talk in Basque (which speakers call Euskara and is said to date to 7000 BC):
Osasuna 2.0: EEBBtako osasuna aroa digitalan: osasunari buruzko informazioa Interneten bidez sortu eta partekatu
Salud 2.0: La salud en la era digital en EE.UU: crear y compartir información de la salud a través de Internet
Health in the Digital Age in the U.S.: how people create and share health information via the Internet
One section of my talk will focus on “roadblocks and opportunities” for participatory medicine and peer-to-peer health care, two concepts the Pew Research Center has explored and which I’ve written about on e-patients.net. I’m looking forward to hearing from my colleagues at the event who no doubt see other roadblocks and opportunities in their own communities. I’ll bring their insights back to the U.S. and share them here.
In order to get the conversation started, here is my list (translations courtesy of Google Translate, apologies if they are inaccurate):
- pockets of people who are truly offline, which mostly describes people age 70 and older or those living with chronic disease or disability.
- people who see no reason to engage in their health, who are not motivated to change their behavior or seek treatment.
- technology that is simply a pain to use.
- communities and tools which are silos of information – unconnected to clinical practice and unable to connect with each other.
- a lack of awareness that online communities, information resources, and other tools exist and can help make a difference in health outcomes.
- caregivers who can help someone access online resources they may need to get better care. Second-degree internet access combined with the power of love.
- a life-changing diagnosis or other event can prompt engagement – and trigger the diagnosis difference, which Pew Research has documented.
- mobile adoption is on the rise and seems to have an independent effect on people’s engagement online – triggering the mobile difference, another Pew Research finding.
- technology that is easy to use, that makes engagement fun and even irresistible.
- technological means to connect silos and let data flow.
- mainstream press coverage, word of mouth, and clinical programs that help to spread awareness.
For more background on what I will discuss in Bilbao, please see: Health Care Hackers; Caregivers: a celebration; The e is for engagement; Peer-to-peer health care: Crazy, crazy, crazy, obvious.
Since I’ll be traveling, with limited connectivity, I may not be able to approve comments until I return to the U.S. on Friday, July 12. Please be patient — they will stay in the queue and we will pick up the conversation then!