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Susannah Fox

I help people navigate health and technology.

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Wow! How? Health

Hack needed: Peer connection

April 18, 2025 By Susannah Fox Leave a Comment

Close up picture of a dandelion

This post is the latest in my series of “Wow! How? Health” stories, also shared on LinkedIn if you want to follow the conversation on that platform. It starts with a story that long-time readers of this blog will hopefully recognize! Ten years ago this week my friend Delina texted me: I am sweeping the kitchen and just found […]

Filed Under: Champions, Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: Allie Signorelli, Delina Pryce McPhaull, Instagram, Katie Couric, Parkinson's, Rebel Health, Wow! How? Health

Wow! How? Patient-Led Research Scorecards

March 27, 2025 By Susannah Fox Leave a Comment

In Dark Times Shine Your Light Brighter

Most stakeholders in biomedical innovation – scientists, clinicians, patients, caregivers, funders, regulators – recognize each other as allies in the fight against disease. But they often lack shared principles and practices to guide the work they do together. For example, a research organization may say they value patient input, but they do not recognize their […]

Filed Under: Champions, Networkers, patient networks, research issues, Solvers Tagged With: Council of Medical Specialty Societies, COVID19, Emily Sirotich, Gary Wolf, Gina Assaf, Hannah Davis, Helen Burstin, Long Covid, Patient-Led Research Collaborative, PCORI, Quantified Self, Rebel Health, Wow! How? Health

Wow! How? “Breaking Brad”

March 6, 2025 By Susannah Fox 2 Comments

A pipette hovers above a dozen test tubes

The latest in my series of stories that hopefully make you say, “Wow! How did they come up with that?” Bradley Burnam loved his job as a medical device sales rep because, as he puts it, he got to play doctor: wear scrubs, visit hospitals, and work with patients. But during one site visit he […]

Filed Under: Champions, Seekers, Solvers Tagged With: Bradley Burnam, Fda, infection control, Rebel Health, Turn Therapeutics, wound care, Wow! How? Health

The Black Panther Party’s Health Innovations

February 20, 2025 By Susannah Fox Leave a Comment

Cover of the book Body and Soul by Alondra Nelson. Black and white photo of seated people wearing white coats and taking a blood sample from the finger of a child.

Here is the 40th in my series of “Wow! How? Health” stories, also shared on LinkedIn if you want to follow the conversation on that platform. In 1971, the Black Panther Party diagnosed the federal government’s failure to study sickle cell anemia, a genetic disease believed at the time to be found predominately in people […]

Filed Under: Champions, Networkers, Seekers, Solvers Tagged With: Alfredo Morabia, Alondra Nelson, Bill Wallace, Black Panther Party, books I love, Long Covid, Mary T. Bassett, personal science, Quantified Self, Rare Disease, Rebel Health, sickle cell anemia, Wow! How? Health

Wow! How? Visualizing Self Care

February 6, 2025 By Susannah Fox 5 Comments

Continuing my series of stories that hopefully make you say, “Wow! How did they come up with that?” Sara Riggare has been living with early-onset Parkinson’s disease since she was a teenager. In my book, Rebel Health, I wrote about her as an example of a Seeker, Networker, and Solver. She is constantly on the hunt […]

Filed Under: Networkers, Seekers, Solvers Tagged With: art, Parkinson's, Rebel Health, Regina Holliday, Sara Riggare, The Walking Gallery, Wow! How? Health

Wow! How? Patient-led Design

January 16, 2025 By Susannah Fox Leave a Comment

A man sits on stage in a wheelchair. Behind him is a screen showing a chair and stool.

Michael Graves, the renowned architect and designer, was hospitalized in 2003 when a sinus infection spread to his spinal cord, a very rare occurrence. He survived but was paralyzed from the chest down.  As he moved among hospitals and rehabilitation centers, Graves was struck by how the patient rooms and furniture were not only ugly, but […]

Filed Under: Champions, Solvers Tagged With: assistive devices, Michael Graves, Rebel Health, Stanford Medicine X, Wow! How? Health

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Recent Comments

  • Lisa Suennen on Wow! How? Community: “That is a beautiful story. Kids always have the best answers” Aug 29, 11:31
  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45

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