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Susannah Fox

I help people navigate health and technology.

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Wow! How? Health

Wow! How? Patient-led Design

January 16, 2025 By Susannah Fox Leave a Comment

A man sits on stage in a wheelchair. Behind him is a screen showing a chair and stool.

Michael Graves, the renowned architect and designer, was hospitalized in 2003 when a sinus infection spread to his spinal cord, a very rare occurrence. He survived but was paralyzed from the chest down.  As he moved among hospitals and rehabilitation centers, Graves was struck by how the patient rooms and furniture were not only ugly, but […]

Filed Under: Champions, Solvers Tagged With: assistive devices, Michael Graves, Rebel Health, Stanford Medicine X, Wow! How? Health

Wow! How? Dr. ChatGPT

December 5, 2024 By Susannah Fox 5 Comments

Wow! How? Health

Every post in my Wow! How? Health. series starts with a story that hopefully makes a reader say, “Wow! How did they accomplish this great health innovation?” The answer is often related to concepts I explore in my book, Rebel Health. Please let me know what you think or if you have questions. Comments are open. When […]

Filed Under: Networkers, peer-to-peer health care, Seekers Tagged With: artificial intelligence, ChatGPT, Rebel Health, Wow! How? Health

Wow! How? Social Support Matters

November 21, 2024 By Susannah Fox Leave a Comment

5 hands gripping 5 wrists

Most people, at the time of their diagnosis with a sleep disorder, do not know a single other person with the same condition. Yet peer support is an effective aid to this group, just as it has been shown to help people navigating pregnancy, living with diabetes, recovering from organ transplant, and managing many other […]

Filed Under: Champions, Networkers, peer-to-peer health care, Seekers Tagged With: hypersomnia, Julie Flygare, narcolepsy, Project Sleep, Rebel Health, sleep disorders, Wow! How? Health

Wow! How? Food Equality

October 11, 2024 By Susannah Fox Leave a Comment

Peas and pods on cutting board

This post is part of my series: Wow! How? Health. My concept is to tell a story that makes a reader say, “Wow! How did they accomplish this great health innovation?” The answer is often related to concepts I explore in my book, Rebel Health. Please let me know what you think or if you have […]

Filed Under: Champions, Solvers Tagged With: Attane Health, Emily Brown, food allergy, food insecurity, Rebel Health, Wow! How? Health

Wow! How? In-your-face Expertise

September 5, 2024 By Susannah Fox 2 Comments

Wow! How? Health

This post is part of my LinkedIn series: Wow! How? Health. I welcome comments on either platform. Thirty-three years ago today, on September 5, 1991, activists unfurled a giant, inflatable condom over a U.S. Senator’s house. Don’t believe me? Watch a 30-second news clip or a 5-minute documentary about the action. It was a splashy way […]

Filed Under: Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: ACT-UP, chronic pain, cluster headache, HIV/AIDS, Joanna Kempner, Long Covid, National Breast Cancer Coalition, Peter Staley, psychedelics, Steven Epstein, TAG, Wow! How? Health

Wow! How? Patient Memoirs

August 29, 2024 By Susannah Fox 2 Comments

Four books: The Long Haul; Chasing My Cure; AfterShock; Wide Awake and Dreaming

In his book, The Long Haul, Ryan Prior writes about his advocacy on behalf of people with ME/CFS: Though I had negotiated a fragile truce with the disease, my deeper fear was that it would eventually fully disable me, just as it had done for so many of my friends…At the edge of my every thought […]

Filed Under: Champions, key people, Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: cancer, David Fajgenbaum, Jessie Gruman, Julie Flygare, Long Covid, Lucy Grealy, ME/CFS, narcolepsy, rare diseases, Ryan Prior, Wow! How? Health

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Recent Comments

  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
  • barbara figge fox on Jean Nidetch, Rebel Health leader: “Jean Neditch helped so many of us! She changed the landscape for weight reduction by leveraging peer support.” May 9, 08:11
  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33

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