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Susannah Fox

I help people navigate health and technology.

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Rebel Health

Public Q&A: “I received scary test results. What questions should I ask my clinician?”

March 26, 2024 By Susannah Fox 8 Comments

Questions marks painted on pavement

Sometimes the hardest part of a new situation, in any aspect of life but particularly our health, is saying out loud the scary thing. Someone dear to me received concerning test results and asked me to help craft a set of questions for their next appointment – the very first one since getting the results […]

Filed Under: peer-to-peer health care, public Q&A, Seekers Tagged With: David Harlow, Elizabeth Cohen, Gilles Frydman, Jennifer Sweeney, Jessie Gruman, Rebel Health, Seekers

Wow! How? Dr. Reddit

March 15, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

A positive psychedelic experience can make you feel at one with the universe. A bad trip can make you feel psychotic. People who want a relatively safer experience have two choices: 1.     Ask a friend to stay sober and be a calming guide (called a “trip sitter”) 2.     Have remedies on hand to blunt or […]

Filed Under: Networkers, peer-to-peer health care Tagged With: British Medical Journal, psychedelics, Rebel Health, Reddit, sexual health, Wow! How? Health

Wow! How? Eating disorder recovery

March 7, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

Thirty million people in the U.S. will have a clinically significant eating disorder at some point in their lives. Treatment gaps mean that only a fraction of sufferers will receive the care they need due to the high cost of traditional, in-patient treatment and a scarcity of mental health professionals available for some populations and […]

Filed Under: Champions, peer-to-peer health care, Solvers Tagged With: eating disorders, Equip, Erin Parks, Kristina Saffran, Rebel Health, Wow! How? Health

Wow! How? Hospital Alarms

February 23, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

Yoko Sen is a musician who, when spending time in a hospital as a patient in 2012, noticed that her cardiac monitor and another patient’s fall-risk alarm created a spooky chord known as the devil’s interval. Composers use it sparingly because it sounds so foreboding. Even in a weakened state, Sen began asking questions about […]

Filed Under: Champions, Solvers Tagged With: Fda, Larry Chu, Nick Dawson, Philips, Rebel Health, Wow! How? Health, Yoko Sen

Rebel Health

February 13, 2024 By Susannah Fox 4 Comments

Book cover: Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care by Susannah Fox. Blue type on a yellow field

My book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, is out in the world! You can pick up a copy at your favorite local bookstore (mine is Politics & Prose) or order it from Barnes & Noble, Amazon, or another online retailer. Thank you for being part of this journey! I use this blog […]

Filed Under: patient networks, peer-to-peer health care Tagged With: MIT Press, Rebel Health

Wow! How? Patient Data Rights

February 8, 2024 By Susannah Fox 2 Comments

Wow! How? Health

Until relatively recently, people living with diabetes were shut out of conversations about improving the devices that keep them alive. Device manufacturers saw clinicians as their customers, not patients, and nobody was asking them to change that stance, including the FDA.  Patients and their loved ones were grateful to have insulin pumps and continuous glucose […]

Filed Under: health data, key people, Networkers, policy issues, Solvers Tagged With: American Diabetes Association, Anna McCollister, Dexcom, diabetes, Fda, Howard Look, MIT Press, Networkers, Rebel Health, Solvers, Tidepool, Wow! How? Health

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Recent Comments

  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
  • barbara figge fox on Jean Nidetch, Rebel Health leader: “Jean Neditch helped so many of us! She changed the landscape for weight reduction by leveraging peer support.” May 9, 08:11
  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33

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