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Susannah Fox

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Lori Thomas

Wow! How? Community

August 29, 2025 By Susannah Fox 1 Comment

Vicki McCarrell had always dreamed of becoming a mother. When she gave birth at age thirty-eight to her son Sean, life seemed complete. Yes, he had the full facial paralysis typical of Moebius syndrome, but otherwise, he looked perfect to her. Indeed, at the hospital near her home in Van Nuys, California, she was given […]

Filed Under: Networkers, Seekers Tagged With: caregivers, Kathleen Bogart, Lori Thomas, Moebius Syndrome, peer-to-peer healthcare, Rare Disease, Rebel Health, Vicki McCarrell, Wow! How? Health

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Recent Comments

  • Lisa Suennen on Wow! How? Community: “That is a beautiful story. Kids always have the best answers” Aug 29, 11:31
  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45

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