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Susannah Fox

I help people navigate health and technology.

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Francis Collins

A helping hand, just in time

August 26, 2019 By Susannah Fox 5 Comments

D-ABNT by Benedikt Lang on Flickr - cropped

Some years ago a few colleagues and I got stuck at Logan Airport and we started telling stories to pass the time. One tale has come back to me over and over again, particularly as I cared for my dad during his last year of life, because it reminded me to be open to the possibility […]

Filed Under: peer-to-peer health care Tagged With: Francis Collins, NIH, Rare Disease, rare diseases, Sharon Terry

Rare Disease Day

February 28, 2015 By Susannah Fox Leave a Comment

NIH atrium by Jason Levine

Today is Rare Disease Day, when we honor the millions of people who teach us what it’s like to live at the edges of the known world of medicine.

Filed Under: positive patterns, pt/doc co-care Tagged With: Alpha Geek, Amy Marcus, Francis Collins, NIH, Rare Disease, rare diseases

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Recent Comments

  • Susannah Fox on Caregiver Survival Guide: “Thank you, Nina! When my loved one and I were forging our care relationship one of my stipulations was that…” Oct 26, 16:28
  • Nina Mayes on Caregiver Survival Guide: “To my fellow caregivers: Give yourself permission to ask for help. Give yourself permission to receive help. Be relentless about…” Oct 26, 15:36
  • Alex on Wow! How? Psychedelic Outlaws: “This is such a thoughtful article — I especially appreciated the way you connected the science with real-world experiences. In…” Oct 26, 01:32

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