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Susannah Fox

I help people navigate health and technology.

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epilepsy

Should peer health community moderators get paid?

September 2, 2021 By Susannah Fox 29 Comments

Sandhill cranes taking flight at sunrise

Evidence is piling up in favor of peer health communities. The question is: How do we sustain them for the long-term? Here are 3 studies (of many) about the benefits of peer-to-peer health advice: A survey of the #bcsm community found that participation lowered people’s anxiety and increased their overall knowledge of breast cancer. A survey of […]

Filed Under: key people, patient networks, peer-to-peer health care Tagged With: #bcsm, breast cancer, CGM in the Cloud, Deanna Attai, diabetes, epilepsy, patientslikeme

A field guide to The Diagnosis Difference

November 26, 2013 By Susannah Fox 67 Comments

The Pew Research Center released a report today on people living with chronic conditions: The Diagnosis Difference. Policy makers, patient advocates, entrepreneurs, investors, clinicians — all health care stakeholders — can use the data to map the current landscape. There are still barren patches, where people remain offline and cut off from the resources and […]

Filed Under: demographics, trends & principles Tagged With: california healthcare foundation, cancer, diabetes, epilepsy, fibromyalgia, Heart Conditions, High Blood Pressure, Lung Conditions, Pew Research Center, Rare Disease, rheumatoid arthritis

Mobile, social, health, care

November 15, 2013 By Susannah Fox 33 Comments

Two people holding hands at the mouth of a tunnel. Uploaded by Adam Foster on flickr

A clinical trial in Kenya confirmed that human kindness is the secret ingredient to health and mobile phones are an ideal delivery system. Well, that’s my interpretation. Here’s the gist: Taking your meds is essential to maintaining your health when you live with a chronic condition. People know this, but they need help doing it. […]

Filed Under: peer-to-peer health care, positive patterns, trends & principles Tagged With: diabetes, epilepsy, HIV/AIDS, Kenya, mhealth summit, mobile, patientslikeme, peer-to-peer healthcare, Project HealthDesign, QuitNet, smoking cessation, SMS

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Recent Comments

  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
  • barbara figge fox on Jean Nidetch, Rebel Health leader: “Jean Neditch helped so many of us! She changed the landscape for weight reduction by leveraging peer support.” May 9, 08:11
  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33

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