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Susannah Fox

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ankle cartilage transplants

Case study: Trevor’s disease

October 4, 2021 By Susannah Fox 18 Comments

Downhill mountain bike racer in motion

A friend recently shared the following story of his successful navigation of the American health care system to get innovative treatment for his ankle. I was so impressed that I thought I’d post it here as a beacon for anyone else searching for answers about the same challenges he has faced. It’s pretty geeky and […]

Filed Under: peer-to-peer health care Tagged With: ankle, ankle cartilage transplants, arthritis, bone spurs, case study, Matt Might, surgery, Trevor's Disease

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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