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Susannah Fox

I help people navigate health and technology.

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Alpha Geek

Rare Disease Day

February 28, 2015 By Susannah Fox Leave a Comment

NIH atrium by Jason Levine

Today is Rare Disease Day, when we honor the millions of people who teach us what it’s like to live at the edges of the known world of medicine.

Filed Under: positive patterns, pt/doc co-care Tagged With: Alpha Geek, Amy Marcus, Francis Collins, NIH, Rare Disease, rare diseases

Alpha Geeks in Health Care

July 6, 2011 By Susannah Fox 28 Comments

Here’s how tech guru Tim O’Reilly describes his work: So often, signs of the future are all around us, but it isn’t until much later that most of the world realizes their significance. Meanwhile, the innovators who are busy inventing that future live in a world of their own. They see and act on premises […]

Filed Under: patient networks, trends & principles Tagged With: Alpha Geek, Clinician, health care, Health Information Exchange, Innovators, librarians, Market Opportunities, Public Health, Public Health Workers, Rare Disease, rare diseases, Technology Gaps

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Recent Comments

  • Susannah Fox on Lessons learned about hospice care: “Thank you for sharing!” Jul 30, 12:46
  • Samitivej Hospital on How I choose which conferences to attend: “Such a thoughtful framework! I especially relate to how much the organizer and audience shape the whole experience. For me,…” Jul 28, 07:42
  • DEANFoundation on Lessons learned about hospice care: “This deeply honest blog sheds light on the hidden challenges caregivers face during hospice care The DEAN Foundation in India…” Jul 21, 09:07

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