I help people navigate health and technology.
I have a new essay up on Medium: Thank you, Sean Parker. I tell why I’m so grateful to him for his gift to food-allergy research and l share a little bit about why I don’t read comments on food-allergy stories.
Also: please check out more cartoons by Tiffany Glass Ferreira — she is awesome:
on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07
There is something powerful and poignant when we can use humor & anger to talk about issues that make people uncomfortable.
In the AIDS community back in the late 80’s early 90’s for example ACT UP often used humor to communicate.. Tom Kalin on national AIDS day 2014 articulated it really well here http://vimeo.com/114684417
So true, Sherry! That’s a great video. I started looking around for examples of ACT-UP history — there are some great ones if you use Google images (not for the prudish, I should say).
Thanks!