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Elizabeth Cohen, CNN Senior Medical Correspondent, captured the zeitgeist of the health data rights movement in today’s must-read article, Patients demand: ‘Give us our damned data’. An e-patients all-star team is quoted in the story: Jen McCabe, Regina Holliday, e-Patient Dave, Alan Viars.
gogogo @ePatientDave and @jensmccabe : http://tinyurl.com/yenuh2v
@ePatientDave and @jensmccabe Health data rights on CNN http://tinyurl.com/yenuh2v
on Crazy, crazy, LongCovid, obvious: “The acceptance is uneven but it does seem to be happening. At present, one of the objections from some regulators…” Jan 26, 17:54
on Crazy, crazy, LongCovid, obvious: “Maneesh, thank you! I want to highlight one of the great points you make: Someone should be documenting the real-time…” Jan 26, 10:57 on Crazy, crazy, LongCovid, obvious: “Thank you, Carolyn! My hope is that because clinician leaders like NIH Director Francis Collins are praising the patient-led researchers’…” Jan 26, 10:23
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