I help people navigate health and technology.
Elizabeth Cohen, CNN Senior Medical Correspondent, captured the zeitgeist of the health data rights movement in today’s must-read article, Patients demand: ‘Give us our damned data’. An e-patients all-star team is quoted in the story: Jen McCabe, Regina Holliday, e-Patient Dave, Alan Viars.
on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07
Now more than ever it is important to be a smart health care consumer which means taking your medical health record into your own hands. LifeGuard30 is a mobile medical record device that was designed to save your life in the event of an emergency by having your pertinent medical information available for emergency personnel. The LifeGuard30 holds medications, allergies, emergency contacts and more. It is a complete system that protects your personal health information and protects you in an emergency situation.