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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Jean Nidetch, Rebel Health leader

May 9, 2025 By Susannah Fox 2 Comments

A blonde woman in a black shirt looks to her left.

Jean Nidetch and six friends decided to try to lose weight together, meeting at her home to encourage and support each other in their quest. Their success drew more friends and in May, 1963, Nidetch launched a company based on the idea that peer support is key to weight control. Over 400 people showed up […]

Filed Under: Champions, Networkers, Seekers, Solvers Tagged With: Jean Nidetch, Rebel Health, Weight Watchers, Wow! How? Health

Rare Disease in the NYT

April 23, 2025 By Susannah Fox 7 Comments

Ultrasound of a baby

My phone started blowing up with texts from friends and family members yesterday morning, alerting me to a New York Times magazine cover story by Amanda Hess, “My Son Has a Rare Syndrome. So I Turned to the Internet” (gift link). Hess writes beautifully about her experience being dropped into the medical maze and her […]

Filed Under: Networkers, peer-to-peer health care, Seekers Tagged With: Amanda Hess, New York Times, Rare Disease

Hack needed: Peer connection

April 18, 2025 By Susannah Fox Leave a Comment

Close up picture of a dandelion

This post is the latest in my series of “Wow! How? Health” stories, also shared on LinkedIn if you want to follow the conversation on that platform. It starts with a story that long-time readers of this blog will hopefully recognize! Ten years ago this week my friend Delina texted me: I am sweeping the kitchen and just found […]

Filed Under: Champions, Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: Allie Signorelli, Delina Pryce McPhaull, Instagram, Katie Couric, Parkinson's, Rebel Health, Wow! How? Health

Wow! How? Patient-Led Research Scorecards

March 27, 2025 By Susannah Fox Leave a Comment

In Dark Times Shine Your Light Brighter

Most stakeholders in biomedical innovation – scientists, clinicians, patients, caregivers, funders, regulators – recognize each other as allies in the fight against disease. But they often lack shared principles and practices to guide the work they do together. For example, a research organization may say they value patient input, but they do not recognize their […]

Filed Under: Champions, Networkers, patient networks, research issues, Solvers Tagged With: Council of Medical Specialty Societies, COVID19, Emily Sirotich, Gary Wolf, Gina Assaf, Hannah Davis, Helen Burstin, Long Covid, Patient-Led Research Collaborative, PCORI, Quantified Self, Rebel Health, Wow! How? Health

Wow! How? “Breaking Brad”

March 6, 2025 By Susannah Fox 2 Comments

A pipette hovers above a dozen test tubes

The latest in my series of stories that hopefully make you say, “Wow! How did they come up with that?” Bradley Burnam loved his job as a medical device sales rep because, as he puts it, he got to play doctor: wear scrubs, visit hospitals, and work with patients. But during one site visit he […]

Filed Under: Champions, Seekers, Solvers Tagged With: Bradley Burnam, Fda, infection control, Rebel Health, Turn Therapeutics, wound care, Wow! How? Health

Rare Disease in the U.S. 2025

February 25, 2025 By Susannah Fox Leave a Comment

Two zebras

Rare disease communities welcomed me as a researcher, inspired me to highlight their ingenuity in my book, Rebel Health, and now I am honored to share results from the first probability-based national survey to measure the rare disease population. I partnered with my former Pew Research colleague Kristen Purcell, now at SSRS, to write the […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: ARCHANGELS, artificial intelligence, ChatGPT, Gemini, peer-to-peer healthcare, Pew Internet, Pew Research Center, Rare Disease, Rebel Health, SSRS, telehealth

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Recent Comments

  • Lisa Suennen on Wow! How? Community: “That is a beautiful story. Kids always have the best answers” Aug 29, 11:31
  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45

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