I think participatory medicine is what Eric Raymond calls a “plausible promise”: something big enough to inspire interest yet achievable enough to inspire confidence. Reforming health care is too big for most people to grasp; creating spaces for participatory medicine is not. E-patients are already finding, sharing, and mashing up health information online. If you […]
Patient Activism–Susannah Fox
If you have doubts about the impact of social media on health care, please read this 2005 post on The Health Care Blog about a grandmother’s campaign on behalf of her grandson. There’s a lot of heart (and snark) in the comments.
Upcoming Conferences–Susannah Fox
I’ll be in Boston tomorrow for a World Congress Leadership Summit. The organizers certainly use all the right key words to describe the event; I’m kind of hoping the presenters get to wear purple robes or something to match the superlatives. The next conference I’ll attend will be in DC. I asked Josh Seidman, president […]
E-patient Interview: Sheryl Stein
Sheryl Stein, known to many as “wrekehavoc,” dispenses her wisdom and humor on a 6,000-member online community of parents (using good old listserve technology) and on her blog. In this third edition of our e-patient interviews, Sheryl talks about the power of community and how “reaching out via the internet is now an ingrained habit […]
E-patient Interview: Amy Tenderich–Susannah Fox
Amy Tenderich is the engine behind DiabetesMine, “a gold mine of straight talk and encouragement for people living with diabetes.” Hearing her speak at Health 2.0 was a highlight of the conference for me and she just co-authored a book, so I wanted to bring her over to our page and ask a few questions […]
No Secrets–Susannah Fox
Ted Eytan‘s April 16, 2008, iHealthBeat column lays out the benefits of providing real-time, secure access to health records: “As our profession understands the benefits of patient partnership better, more medical groups are discovering that there aren’t compelling arguments for keeping patients’ information secret.”
Recent Comments