• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Rebel Health
  • Blog
    • greatest hits
    • health data
    • peer-to-peer health care
    • public Q&A
  • About me
    • Bio
    • Now
    • Curriculum vitae
  • Events

Susannah Fox

Jill Dopf Viles, DIY scientist

August 15, 2025 By Susannah Fox Leave a Comment

Book cover: Manufacturing My Miracle: One woman's quest to create her personalized gene therapy, by Jill Dopf Viles. Bloomsbury

Jill Dopf Viles suspected a killer was hiding in her family’s genetic code. Symptoms popped up among her siblings, her father, her uncle, her grandmother, but, despite 15 annual visits to the Mayo Clinic, no clinician suggested anything more specific than muscular dystrophy. Viles studied genetics in college and spent hours in the library, reading […]

Filed Under: Champions, Networkers, Seekers, Solvers Tagged With: books I love, Jill Dopf Viles, muscular dystrophy, Rare Disease, rare diseases, Rebel Health, Wow! How? Health

Diabetes by Design

July 11, 2025 By Susannah Fox Leave a Comment

Two posters on a wall above folding chairs. One mimics a famous Beatles album design and reads "Type 1 Diabetes" above four figures. The other poster features a fist holding an insulin pen with the words RAGE BOLUS above it.

Alex Durussel-Baker was on a plane taxiing down a runway when she found out she had Type 1 diabetes. She had been increasingly tired and had lost a lot of weight without meaning to, so had gone to a clinic where she lives in Edinburgh to get checked out.  The nurse was reassuring – even […]

Filed Under: Networkers, Solvers Tagged With: diabetes, Rebel Health, Wow! How? Health

Wow! How? Psychedelic Outlaws

June 27, 2025 By Susannah Fox Leave a Comment

Part of the Psychedelic Outlaws book cover. Glass dishes containing tablets, mushrooms, and capsules.

Imagine the nerves behind one of your eyes suddenly bursting into flames of pain, relentlessly burning for hours. The pain recedes, then roars back, day after day. You try to describe what is happening inside your head to your family, your clinicians, even yourself, but words fall short. It is the worst pain a human […]

Filed Under: Champions, Networkers, patient networks, peer-to-peer health care, Seekers, Solvers Tagged With: books I love, Clusterbusters, David Fajgenbaum, Global Genes, Joanna Kempner, Patient-Led Research Collaborative, psychedelics, Rebel Health, Wow! How? Health

Wow! How? Cancer Treatment Innovation

May 30, 2025 By Susannah Fox Leave a Comment

A pipette hovers above a dozen test tubes

This post is the latest in my series of “Wow! How? Health” stories, also shared on LinkedIn if you want to follow the conversation on that platform.  When Michael Katz was diagnosed with multiple myeloma, he was fortunate to connect with someone who had recently completed treatment, the “just-in-time someone-like-me” that could guide him. He vowed to do the […]

Filed Under: Champions, Networkers, Seekers Tagged With: ACOR, cancer, Clinical Trials, International Myeloma Foundation, Mayo Clinic, Michael Katz, multiple myeloma, Rebel Health, Vincent Rajkumar, Wow! How? Health

Jean Nidetch, Rebel Health leader

May 9, 2025 By Susannah Fox 2 Comments

A blonde woman in a black shirt looks to her left.

Jean Nidetch and six friends decided to try to lose weight together, meeting at her home to encourage and support each other in their quest. Their success drew more friends and in May, 1963, Nidetch launched a company based on the idea that peer support is key to weight control. Over 400 people showed up […]

Filed Under: Champions, Networkers, Seekers, Solvers Tagged With: Jean Nidetch, Rebel Health, Weight Watchers, Wow! How? Health

Rare Disease in the NYT

April 23, 2025 By Susannah Fox 7 Comments

Ultrasound of a baby

My phone started blowing up with texts from friends and family members yesterday morning, alerting me to a New York Times magazine cover story by Amanda Hess, “My Son Has a Rare Syndrome. So I Turned to the Internet” (gift link). Hess writes beautifully about her experience being dropped into the medical maze and her […]

Filed Under: Networkers, peer-to-peer health care, Seekers Tagged With: Amanda Hess, New York Times, Rare Disease

  • Go to page 1
  • Go to page 2
  • Go to page 3
  • Interim pages omitted …
  • Go to page 112
  • Go to Next Page »

Footer

Explore

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Topics

  • Seekers
  • Networkers
  • Solvers
  • Champions
  • Health Data
  • Peer-to-Peer Health Care
  • Public Q&A

Recent Comments

  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45
  • Susannah Fox on Lessons learned about hospice care: “Thank you for sharing!” Jul 30, 12:46

Copyright Susannah Fox © 2025 · WordPress · Log in