Juhan Sonin and his team at Involution Studios capture essential health messages in cards — actual, physical cards that you can stack in a deck or lay out across a table. The front is an arresting image and the back lists evidence and tips. The cards are tactile, delightful artifacts of an ongoing conversation that Invo is holding with the world.
I contributed to a recent newcomer to the deck: Slow Down. I was inspired by Fahd Butt‘s “slowgrams” — the sketches he produced instead of trying to capture life moments with a camera.
Poetry is my personal slow-down hack. I never leave for a trip without tucking a favorite book of poems into my bag. Grace Paley, Billy Collins, and Vera Pavlova are currently seeing a lot of the country.
Because even as I relentlessly gather, share, and create evidence for why peer-to-peer health care will transform our lives, if we let it, I know that my own health and happiness must come first.
I’m taking advantage of the “snow day” to share what I have been reading, watching, listening to, thinking about — and I invite you to join me, even if you don’t have a snow day. (Truth be told, DC only got a couple of inches and a 2-hour delay, but humor me.)
Anna Dorfman (doorsixteen on Instagram) posted this lovely shot of Columbus Park in NYC. I thought umbrellas-in-a-snowstorm was just a DC thing. Curator credit: New York Times.
Legitimacy through public service: The New York Times lifted their pay wall so non-subscribers could follow their storm coverage. I love when legacy media companies are aware of the responsibility — and opportunity — embedded in moments of public need. How might we infect medical and scientific journals with the same sense of responsibility and opportunity? Continue reading →
Longtime readers will recognize this story, but I’m posting it again here–and on Medium–to honor Moebius Syndrome Awareness Day:
When Burt Minow was born in 1922, his disability — partial hearing loss and complete facial paralysis—was immediately apparent. His mouth was frozen in a sort of frown, and he could not suck on a nipple to get milk. Doctors advised his parents to put him in an institution and forget about him. Continue reading →
I hunkered down at the library this week, working on a couple of long-term projects.
I kept one eye on Twitter, though, as I always do, and wanted to share what distracted — and inspired — me this week:
Radiolab: Worth — what would you pay for another month of life? How about a year? They get into the debate about Solvadi, which I find fascinating, and wind up talking to patients, “the people who aren’t at medical conferences.” Thanks to Mike Evans, MD, for tweeting the link.
I respect secrets. When my grandmother died at age 96 and a half, her final words were: “Erase my email.” Why? I don’t need to know. And she is not someone you want to cross (present tense — her spirit is still here with me, urging me to live a big life.)
But I am also a voyeur. So I visit PostSecret and greedily drink each one, like I’m doing shots of other people’s truth.
PostSecret’s creator, Frank Warren, opened a door for people to creatively reveal themselves to, essentially, themselves. And, when everyone rushed in to share, he let us all in on the biggest secret: we are all imperfect, we are all human. Continue reading →
I have a new essay up on Medium: Thank you, Sean Parker. I tell why I’m so grateful to him for his gift to food-allergy research and l share a little bit about why I don’t read comments on food-allergy stories.
Forty-five makers, thinkers, designers and doers gathered in Cincinnati for a two-day meeting to kick off “Phase Zero” of a new initiative to imagine a new system of care for people living with Type 1 diabetes (T1D). The best way I can describe the group is that everyone was “game,” meaning up for anything, silly or serious.