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NORD

Raise Awareness of the Reality of Rare Disorders–Susannah Fox

February 4, 2009 By Susannah Fox 15 Comments

Wendy White, Founder and President of Siren Interactive, contributes this essay: One in ten Americans is living with a rare disorder, but they are often overlooked in the media, in research circles, and in their local communities. The 2nd Annual Rare Disease Day on Feb. 28, 2009, is an opportunity to change that.

Filed Under: patient networks Tagged With: NORD, rare diseases

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  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
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