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Susannah Fox

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Archives for March 2025

Wow! How? Patient-Led Research Scorecards

March 27, 2025 By Susannah Fox Leave a Comment

In Dark Times Shine Your Light Brighter

Most stakeholders in biomedical innovation – scientists, clinicians, patients, caregivers, funders, regulators – recognize each other as allies in the fight against disease. But they often lack shared principles and practices to guide the work they do together. For example, a research organization may say they value patient input, but they do not recognize their […]

Filed Under: Champions, Networkers, patient networks, research issues, Solvers Tagged With: Council of Medical Specialty Societies, COVID19, Emily Sirotich, Gary Wolf, Gina Assaf, Hannah Davis, Helen Burstin, Long Covid, Patient-Led Research Collaborative, PCORI, Quantified Self, Rebel Health, Wow! How? Health

Wow! How? “Breaking Brad”

March 6, 2025 By Susannah Fox 2 Comments

A pipette hovers above a dozen test tubes

The latest in my series of stories that hopefully make you say, “Wow! How did they come up with that?” Bradley Burnam loved his job as a medical device sales rep because, as he puts it, he got to play doctor: wear scrubs, visit hospitals, and work with patients. But during one site visit he […]

Filed Under: Champions, Seekers, Solvers Tagged With: Bradley Burnam, Fda, infection control, Rebel Health, Turn Therapeutics, wound care, Wow! How? Health

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12
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  • Susannah Fox on Rare Disease in the NYT: “Thank you, Dave! Yes, I’ve been a fan of Hess’s writing for a long time and now, well, I’m a…” Apr 23, 22:00

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