If you have doubts about the impact of social media on health care, please read this 2005 post on The Health Care Blog about a grandmother’s campaign on behalf of her grandson. There’s a lot of heart (and snark) in the comments.
I help people navigate health and technology.
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Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07
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