I am thrilled to share that my research partners and I will release a new survey report on March 17: Coping with COVID-19: How Young People Use Digital Media to Manage Their Mental Health. In 2018, Vicky Rideout and I collected data and stories from a nationally-representative sample of 14- to 22-year-olds, many of whom […]
From stunt to solution
I’m so nostalgic for breathing in other people’s ideas and aerosols that I’m re-reading notes from past meetings. Today’s inspiration: a March 2018 meeting convened by Eleonore Pauwels and Todd Kuiken to discuss barriers to citizen-driven biomedical research. My notes: Community biolabs, incubators, and accelerators are like ramps and bridges for citizens to gain access […]
Standing ovation… then crickets
About a decade ago I saw someone give the exact same speech in two different venues, with dramatically different results. The first time was in a packed Lincoln Center concert hall in New York, in front of a warmed-up, internet-savvy conference audience. Their response? A sustained standing ovation. They knew they had just learned something […]
The Data Puzzle of Our Time
When the pandemic hit, we needed both grassroots and industrial-strength data platforms to effectively respond to the crisis. I have written about scrappy, patient-led data innovation. Today I want to share a broader view, thanks to a conversation I recently had with Tim Paydos, Vice President & General Manager of IBM Government. (I’m proud to disclose […]
“I’ve been there, let’s change things” innovation
My mission is to boost the signal for peer health advice at every level of our health care system. Today I am thrilled to share that Equip, one of the peer-powered startups I advise, has closed $13 million in Series A financing, spurring it toward the transformation of eating disorder treatment. Kristina Saffran, CEO of Equip, recovered […]
LongCovid’s citizen scientists
Amy Dockser Marcus writes with the sensitivity and precision of a scientist, which is why I was thrilled that she recently turned her attention to the patient-led research being conducted by people with LongCovid, which affects an estimated 10-20% of COVID-19 patients. The Wall Street Journal‘s pay wall may prevent you from reading the full […]
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