Christine Bechtel, Lygeia Ricciardi, Dave deBronkart, Casey Quinlan, and Donna Cryer published an article in Health Affairs this week: “Why Aren’t More Patients Electronically Accessing Their Medical Records (Yet)?” Please click through and read it — it’s open access. Being a health geek, I read footnotes and every link in this article is worth your time. Bechtel […]
How to make 10 million discoveries
When people’s questions go unanswered, they don’t stop asking them. They turn to Dr. Google and other sources. They try to solve their own mysteries, using whatever they can find. This is an opportunity that some people misread as dangerous or wrong. How might we help more people contribute to discovery of new treatments or […]
Mystery solved. Again.
Friends, I have yet another so-extraordinary-it’s-ordinary story of peer-to-peer health care to share. Andrew Wilkinson wrote on Twitter: A few months ago, as a last ditch effort, I posted on Twitter about the horrible acid reflux which I’d been suffering from for almost 10 years. I had tried just about everything. Proton pump inhibitors, dietary […]
Public Q&A: conference organizing
A friend asked me to share some of my tips about how to organize a useful, comfortable, inclusive health care conference. Meeting planning is not what I do for a living, but since I attend about a dozen events each year, I’ve captured quite a few observations about how to create a great experience for […]
What I’m reading and admiring…
Here are the open tabs on my browser right now: Networks and Pickup Basketball, by Eugene Eric Kim. I’m always looking for images and metaphors to help people understand complex ideas — this is a powerful (and fun) one. Kim explores the infrastructure and protocols of decentralized, open systems that allow for creativity while discouraging […]
What’s your advice?
My dad was a survivor — of a heart attack in his 50s, kidney cancer in his 60s, and an initial diagnosis of melanoma in his 70s. Melanoma recurrence and complications of treatment are what finally got him. A lifelong runner, Dad kept meticulous notes about his mileage and heart rate on paper. He bought […]
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