Years ago, I met a mom of a child with a rare disease who matter-of-factly shared her story, which included as many twists and close calls as any blockbuster summer movie. I marveled at her heroism and she said no, she rejects that description. “I’m not a hero,” she insisted. “I’m a typical mom. You […]
A helping hand, just in time
Some years ago a few colleagues and I got stuck at Logan Airport and we started telling stories to pass the time. One tale has come back to me over and over again, particularly as I cared for my dad during his last year of life, because it reminded me to be open to the possibility […]
Assessing the quality of peer health advice
“Can you really trust what you read online?” is a frequent (and valid) question about online health information, particularly peer to peer advice. People who are part of healthy peer communities sometimes scoff at the question since they see so much good coming from the opportunity to connect and share information. But how might we […]
Public Q&A: Acronyms, protocol, and other lessons learned from switching fields
If you have switched career tracks, what lessons did you learn? What advice would you have for someone entering a new company, organization, or even a new culture? Here’s an excerpt from my 2016 interview with The Public Manager about working for the U.S. government: Most of your career was outside of the federal government. What have […]
Celebrating invention and innovation
We are going to need all the ingenuity and help we can get to untangle and improve health and health care. Everyone should have access to the data, information, and tools they need to solve problems. That includes access to each other – peer to peer. My hope is for people to look at a […]
A Matter of Trust, Perception, Risk, and Uncertainty
The Big Issues Raised by the Acquisition of PatientsLikeMe and Other Patient Data Transactions By Susannah Fox, Jane Sarasohn-Kahn and Lisa Suennen I’ve lived long enough to have learned The closer you get to the fire the more you get burned But that won’t happen to us Cause it’s always been a matter of trust -A […]
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