Participatory medicine and health data rights on NPR–Susannah Fox

NPR’s Morning Edition story, “Patients Turn to Online Buddies for Help Healing,” combined research and real-life examples, participatory medicine and health data rights.

Much of what I said during my interview with Joseph Shapiro is based on what I’ve written and read here on e-patients.net, so, first, thank you.

I’ve already started answering questions on Twitter about some of the assertions in the story, so let’s keep the conversation going here, too. Continue reading