A conversation broke out on Twitter this morning about the evolution of online patient communities — how some people prefer to stick with older, familiar, “it just works” technologies rather than try to migrate to a new platform. Catch up by reading this Storify. I’d love to work on this with the health geek tribe […]
Examples, please: peer-to-peer healthcare
I’m writing an article and would love to tap into this community’s knowledge. I know of a few examples of clinical practices using Facebook and Twitter to connect with patients, such as MacArthur OB/GYN, but I’d love to learn about other examples, especially ones which use social networking tools to connect patients and caregivers with […]
Pandas, Lobsters, and Health Care
Joe Kvedar asks an excellent question in his post, The Next Phase of Connected Health: Connected Personalized Health: What are the best variables to consider when taking connected health programs from pilot to scale? He imagines a matrix with three axes: severity of chronic illness, patient readiness, and technology readiness. That makes sense to me, […]
A New Conversation About Health Privacy: Who’s In?
Facebook has sparked a new debate about privacy and I think it’s time to bring it to health care. What does it mean when millions of people flock to share/overshare information, even as Facebook’s default privacy settings have slowly become openness settings (but the company maintains radio silence)? Pew Internet research shows that a sizeable […]
E-patients.net = suggested reading–Susannah Fox
Gretchen Berland is one of my heroes, so I was thrilled when she asked me to give a guest lecture at Yale. Then I read the syllabus for “Media & Medicine in Modern America.” It’s too cool to keep to myself…
Twitter, Facebook, and e-patients–Susannah Fox
Here is a key line from the Pew Internet Project’s report on Twitter and status updating: Twitter users engage with news and own technology at the same rates as other internet users, but the ways in which they use the technology—to communicate, gather and share information—reveals their affinity for mobile, untethered and social opportunities for […]
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