Image above: Megan Smith, Obama White House Chief Technology Officer; Steven Keating, holding replicas of his brain tumor; and John P. Holdren, Director of the Obama White House Office of Science and Technology Policy; on the day the Precision Medicine Initiative was announced. I’m honoring the contributions of my community colleagues over the years by […]
peer-to-peer health care
At no other time in history have we been able to communicate across the world, in an instant, with anyone and everyone who has knowledge and experience to share. Never has it been so easy to solve problems together. When it comes to your health, your community may be your superpower.
I often share links on Twitter, but without the context I’d love to give to each one. A few recent stories of the power of peer connection around health and well-being: Washington Post: Butterfly babies : A rare disease makes these young girls’ skin break and peel at the slightest touch, like a butterfly’s wings As […]
We have a “last mile” problem in patient communities. In the first post of this series, I asked for general advice about finding your people — the peers who could give you advice about your health condition and answer even your most secret questions. Now I’d like to focus on how someone would approach getting […]
The internet gives us access not only to information, but also to each other. That deceptively simple insight, gained from years of research, contains so much of the hope I have for the future of health and health care. When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. […]
Thanks to Joyce Lee, MD, for resurfacing this talk on Twitter today! In watching it again, I’m struck by how the data needs to be updated, but the insights don’t. Clinicians have not yet missed their chance to contribute to the online health revolution (nearly 4 years later)! The tools are going to change, but what […]