I shadowed a mom and her 5-year-old with CF from afar for 24 hours. It taught me more than I could have imagined about living with a life-shortening disease — and about myself. This “empathy exercise” was organized by Smart Patients, an online community where patients and caregivers learn from each other.
If you crave inspiration, tune in to the Robert Wood Johnson’s Pioneering Ideas podcast by subscribing to the iTunes feed or listening on Soundcloud: https://soundcloud.com/rwjf-podcasts/final-cut-episode-8/s-q4foj
Last Saturday I posted a round-up of what caught my eye during the week and my friend Andre Blackman (@mindofandre) created this awesome graphic: Thus encouraged, here’s another round of what I favorited on Twitter this week: Nancy Stein (@SeniorityMatter) shared an opinion piece by Rob Lowe about long-term care planning. He’s promoting his partnership […]
I have a new essay up on Medium: Thank you, Sean Parker. I tell why I’m so grateful to him for his gift to food-allergy research and l share a little bit about why I don’t read comments on food-allergy stories. Also: please check out more cartoons by Tiffany Glass Ferreira — she is awesome:
“At one level, we just flipped a switch. It wasn’t a complicated, multi-faceted, variegated intervention. All we did was open up the doctor’s notes… Out of that came a cascade.” – Tom Delbanco talking about OpenNotes and how a seemingly simple change — allowing patients to view clinicians’ notes from their visits — is having […]
I see parallels between the current state of health data tracking and the trajectory of adoption we saw in the early days of internet, broadband, and mobile adoption. Here’s a clip I just found from an interview with WHYY’s Dan Gottlieb in which I explain what I mean by that: I loved being part of the […]